Webinar Recording – LEAP: The Roadmap to Treatments for Kabuki Syndrome
KSF’s research team unveiled LEAP live on June 20 and the recording is now available on YouTube!
Thank you to the 100+ community members who joined us live. Your thoughtful questions and enthusiastic comments are so appreciated and truly help KSF shape future events and research projects. Join us on August 1st for our next webinar – stay tuned for details and more event updates.
What is LEAP? LEAP is the key to unlocking life-changing treatments for Kabuki syndrome on an accelerated timeline. LEAP is based on the Kabuki syndrome community’s greatest needs, input from KSF’s Medical & Scientific Advisory Board, and lessons from over 20 years in rare disease research. Watch the recording to get ready for this exciting time in Kabuki syndrome research and discover:
- How LEAP opens doors to a future with treatments
- Why each part affects you as a patient, caregiver, or researcher
- What you can do to drive research to help find treatments that matter
This webinar features:
Dr. Bruce Bloom, KSF Chief Science Officer;
Dr. Clara Tang, KSF Director of Research;
Janet Lee, Mom to Emily, and KSF Executive Director;
and Amanda Gamboa, Mom to Ripley and KSF Outreach Coordinator.