Fundraise for Kabuki Syndrome Foundation

Families are driving the future of Kabuki syndrome. They are not bystanders in this story, but leaders shaping brighter futures for the entire global community.

Every fundraiser brings us one step closer to meaningful treatments, improved care, and a better future for individuals and families living with Kabuki syndrome. This work is powered by the community, and it’s happening now.

Start Your Fundraiser Today

Join the KSF DIY (Do It Yourself) Fundraising Community by creating a quick, customizable fundraising page you can share with friends, family, and your wider network.

Join Now

How It Works: 3 Simple Steps

Create Your Page

Tell your story, upload photos, and explain why fundraising for Kabuki syndrome research matters to you.

Set Your Goal

Choose a fundraising goal that feels right. Every dollar makes a difference. And your supporters want to see you hit your goal!

Start Fundraising

Invite friends, family, and your community to support your fundraiser through email, social media, or events.

Let's go!

Why DIY Fundraising Matters

Progress in rare disease research happens because individuals step forward.

DIY fundraising empowers you to take action by sharing your personal connection to Kabuki syndrome and inviting others to join you. Whether you are a parent, family member, friend, clinician, or advocate, your voice helps accelerate research, strengthen care, and support families.

Every fundraiser brings us closer to treatments – and to meaningful change.

Every dollar raised fuels a brighter future for everyone with Kabuki syndrome.

Start Fundraising Download the Fundraising Toolkit

FAQs

What is DIY fundraising?

DIY fundraising allows individuals to create personal fundraising pages on behalf of the Kabuki Syndrome Foundation and invite others to donate in support of Kabuki syndrome research and programs.

Who can start a fundraiser?

Anyone can start a fundraiser to support Kabuki syndrome research—people with Kabuki syndrome, parents, family members, friends, clinicians, advocates, students, or community groups. You do not need prior fundraising experience.

Can I participate in another language or from outside the US?

You can participate from any country! When you customize your page, you can write your description in your preferred language but other features will appear only in English at this time. Please contact us if you live outside the United States and would like to explore other ways to fundraise.