Mid-Atlantic Family Gathering

This annual picnic is hosted by Kristin Anzelc and Dr. Jacqueline Harris, Kennedy Krieger Institute, in partnership with the Kabuki Syndrome Foundation.

Held in the greater Baltimore area each fall, this event enables families to connect with each other and with current research in Kabuki syndrome.

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Connect & Share

People living with Kabuki syndrome can be the best experts, and this gathering offers an opportunity for you to connect with each other. You can also meet expert clinician and researcher, Dr. Harris, to learn more about her work with KSF and ask questions. Plus, Kristin is a KSF Research Ambassador and able to share her research experiences and other resources for families.

The gathering is typically held on a Saturday or Sunday in mid-October. If you would like to be notified of future events, please sign up below. We look forward to hosting you!

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Questions?

Curious about this event or other resources? Email us at any time: info@kabukisyndromefoundation.org or click the link below.

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FAQ
Key Publications
Key Publications
Resources For Families
Resources For Families

Latest Updates

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KSF Launches Kabuki INSIGHTS: The Kabuki Syndrome Registry and Data Hub

The Kabuki Syndrome Foundation is proud to announce the launch of  Kabuki INSIGHTS, a global research registry and data hub for people with Kabuki syndrome and their families. Kabuki INSIGHTS brings together patient- and caregiver-reported information to support research, improve understanding of Kabuki syndrome over time, and inform future clinical and therapeutic efforts. Each person … Continued

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Global Community in Action! The Kabuki Syndrome Collective

This is the September edition of The Kabuki Syndrome Collective, the Kabuki Syndrome Foundation’s newsletter for our global community. Sign up below to receive future editions in your inbox. Kabuki syndrome families, researchers, clinicians, and the KSF team have been taking action in communities and professional networks around the world lately. Now, we’re getting ready … Continued

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A Mission for the Next Chapter

When a group of frustrated families founded Kabuki Syndrome Foundation, the goal was simple but ambitious: help make treatments for Kabuki syndrome possible. What began as an organization focused on funding research has evolved into the global hub for Kabuki syndrome research, collaboration, and community. Since 2018, KSF has awarded 28 research grants to 29 … Continued

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