At KSF’s latest Annual Research Conference, 450 families, researchers, and clinicians from 35 countries connected and interacted on our virtual platform. 15 researchers shared and discussed their latest research findings and initiatives, stimulating collaborations amongst researchers while engaging patient families in Kabuki syndrome research. A couple of our most popular segments were:
- Panel and Q&A: Celebrating Adults with Kabuki Syndrome
- Panel and Q&A: Exploring Educational Supports & Settings
- 5-Minute Flash Talks from Key Institutions featuring Drs. Bodamer, Harris, Bjornsson, and Banka.
Researchers also shared an update on the ORYZON clincal trial, hosted deep dives into clinical management guidelines, immune system changes, low muscle tone, and much more. Thank you to all our panelists and speakers this year!