Your participation is key to improving the quality of life for people with Kabuki syndrome.

The Kabuki Syndrome Foundation accelerates the most promising and impactful research through fundraising and creating collaborative efforts between researchers and families.

But research can’t move forward without your help. Take the first step by joining the community and staying up to date.

Join Us!

Participate in Research

Your participation is critical, and we know your time is valuable. Each unique person is part of our community's ability to advocate for treatments - no matter if your medical chart says "mild" or "severe" or type 1 or 2 or both.

Your story and your samples matter.

Fundraise for Research

In order to fuel research that changes lives, we need to fundraise as a community. Everyone can do something, and there are a variety of ways to fundraise. Contact us to talk about how we can support your personal fundraising efforts or your interest in sponsoring a KSF event.

Get Started

Planned Giving

We thank all our donors and want to take a moment to especially honor those who support Kabuki syndrome research beyond their own lifetimes. We are humbled by your donations received in memory of a loved one. These legacy donations have a lasting impact on improving the quality of life for people with Kabuki syndrome.  If you would like to suggest donation in lieu of flowers, the following language can be used in an obituary:

Donations can be made in memory of (Name) by visiting www.kabukisyndromefoundation.org. Donations made will advance research to find treatments for Kabuki syndrome. Online donations are most secure and efficient for you. Alternatively, checks can be made to: Kabuki Syndrome Foundation, PO Box 214, Northbrook, IL, 60065.

If you would like more information about becoming a legacy donor, giving through a DAF, or including KSF in your beneficiary disbursements, please let us know.

Contact Us

Become a Volunteer

Interested in sharing your time and expertise? We’d love to hear from you. Volunteers are a crucial part of our ability to advance our mission.

Volunteers with experiences in the nonprofit sector or in the following fields are especially appreciated at this time: fundraising, event planning, accounting, database management, and graphic design.

Join Team KSF

We’re Listening.

Want to learn more about how your involvement and fundraising efforts can impact Kabuki syndrome research? Interested in exploring a partnership opportunity? We would love to hear from you.

Contact Us