The Kabuki Syndrome Foundation accelerates the most promising and impactful research through fundraising and creating collaborative efforts between researchers and families.
But research can’t move forward without your help. Take the first step by joining the community and staying up to date.
Join Us!
In order to fuel life-changing research, we need to raise funds as a community.
You can become a fundraiser in just minutes by creating a custom fundraising page. Or if you’re dreaming of something bigger, we’d love to hear about it!
Monthly giving, honorary donations, planned giving, DAF, and more — no matter how you give, you are supporting resources and research that improves the lives of people with Kabuki syndrome.
Your participation is critical, and we know your time is valuable. Each unique person is part of our community's ability to advocate for treatments - no matter if your medical chart says "mild" or "severe" or type 1 or 2 or both.
Your story and your samples matter.
Volunteers, online and in person, help advance our mission and support our growing community.
Interested in sharing your time and expertise? We’d love to hear from you.
Want to learn more about how your involvement and fundraising efforts can impact Kabuki syndrome research? Interested in exploring a partnership opportunity? We would love to hear from you.
Contact Us
