Registration for Annual Conference Now Open!

Interested in Kabuki syndrome treatments? 
This event is for you.

Recordings now available! And the 2024 Community Survey is open until mid-January 2025. Caregivers and adults with Kabuki syndrome are invited to participate to help shape future Kabuki syndrome treatments.

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Thursday, December 5, 2024
9 am – 1 pm EST (NYC)
Live, Virtual, Free

At our live conference, you will hear updates on the NOW NINE treatments in development and how we’re moving them closer to clinical trials. Researchers will share the latest discoveries your donations have made possible. And experts will be there to answer your questions live. You’ll also hear from several adults with Kabuki syndrome, back by popular demand!

A new opportunity for caregivers and patients will also launch during the conference. We want to know: what treatments are you most interested in? What types of side effects are you most concerned about? Your opinion is needed to help drive research to treatments and clinical trials designed with you in mind.

Your support makes treatments possible. Register & join us!