Planned Giving

KSF is committed to finding treatments for individuals with Kabuki syndrome. Create your personal legacy and maximize your lasting impact on the future of Kabuki syndrome treatments and therapies.

Planned giving strategically supports our mission, enabling individuals to leverage their assets for Kabuki syndrome research during and beyond their lifetime. It maximizes charitable impact while potentially offering tax advantages. Through bequests, trusts, and other planned methods, your legacy of generosity continues even after you’re gone.

Bequests to KSF

By making a bequest —a gift in your will or living trust that costs nothing in your lifetime—you can ensure future funding for Kabuki syndrome research. Your bequest can be tailored to your preferences, whether it’s a set amount, a percentage of your estate, specific assets, or the remainder after other distributions. This thoughtful gesture ensures that your legacy contributes to the ongoing quest to find treatments for Kabuki syndrome. Please notify if you have made a bequest to KSF.

Sample, non-binding bequest language:

I give to the Kabuki Syndrome Foundation (“KSF”), a not for profit, tax-exempt organization incorporated in Delaware in 2018, with a principal address of  PO Box 214, Northbrook, IL 60065, federal tax identification number 82-5401904, ________% of my total estate (or $_____) for the general purposes of KSF.

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Giving in Memoriam

If you would like to suggest donations in lieu of flowers, the following language can be used in an obituary:

Donations can be made in memory of (Name) to The Kabuki Syndrome Foundation. Donations made will help advance research to find treatments for this rare disease. You can donate online: Please indicate who your gift is in honor of in Payment Information. Alternatively, checks may be made payable to: The Kabuki Syndrome Foundation, and mailed to: The Kabuki Syndrome Foundation, P.O. Box 214, Northbrook, IL, 60065. Please include in the Memo of the check who this gift is in honor or memory of. A tax receipt will be mailed to you. 

More Legacy Planning Options

Beneficiary Designations

A beneficiary designation allows you to make a substantial gift—one that’s often larger than what you could contribute during your lifetime. You may designate KSF as the primary or contingent beneficiary of all or part of your assets like IRAs, 401(k)s, or life insurance policies. 

Charitable Lead Trust

A charitable lead trust provides support for KSF now—and helps your loved ones in the future with potential tax deductions and/or savings. Charitable lead trusts operate for a set term, which could be the life of one or more individuals, and payments are made to one or more designated charitable beneficiaries for that time period. After the end of the trust term, the remainder of the trust is distributed to non-charitable beneficiaries—such as family members.

IRA Qualified Charitable Distributions for IRA owners aged 70 ½ or older

A qualified charitable distribution (QCD) is a distribution of funds from your IRA (other than a SEP or SIMPLE IRA) directly to a qualified charitable organization, such as the Kabuki Syndrome Foundation. Because the gift goes directly to the charity without passing through your hands, the dollar amount of the gift may be excluded from your taxable income up to a maximum of $100,000 annually, with some exceptions.  Please consult your plan administrator for information regarding your specific exceptions. To learn more about QCDs, please visit

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