Thank you for joining KSOC!

Boston Children’s Hospital and Holland Bloorview Kids Rehabilitation Hospital

Following your KSOC visit, you can request a summary of your neuropsychological test results via email to the research coordinator at the institution. Along with the scores for each test performed, there will be a brief explanation of each test, including its description and goals. Please note that these tests are conducted for research purposes and are not equivalent to comprehensive clinical evaluations for Individualized Education Plans (IEP) or Supplemental Security Income (SSI) eligibility, as no additional medical diagnoses will be given. Boston Children’s patients can request an IEP support letter based on the KSOC scores by sending an email to the research coordinator. Bloorview patients receive their results in a letter format.

Kennedy Krieger Institute

Following your KSOC visit, you can request a summary of your neuropsychological test results via email to the research coordinator at the institution. Along with the scores for each test performed, there will be a brief explanation of each test, including its description and goals. Please note that these tests are conducted for research purposes and are not equivalent to comprehensive clinical evaluations for Individualized Education Plans (IEP) or Supplemental Security Income (SSI) eligibility, as no additional medical diagnoses will be given. If interested, patients can request an IEP support letter based on the KSOC scores by sending an email to the research coordinator.

Families and/or adult patients visiting Kennedy Krieger Institute who wish to schedule a full clinical evaluation, which includes a comprehensive neuropsychological evaluation, must request this at the time of scheduling their KSOC appointment with the research coordinators.

Seattle Children’s Hospital

Neuropsychological testing summaries are not available at this location due to research restrictions.

More Information on Neuropsychological Testing

Neuropsychological evaluation results may support you/your child in various ways. Please note that while these tests provide insight into areas of cognitive strengths and weaknesses, the tests administered through KSOC are conducted for research purposes and are not equivalent to comprehensive testing. Comprehensive testing can help school-aged children by identifying specific learning disabilities, cognitive strengths and weaknesses, and providing tailored recommendations for educational support and interventions. These evaluations can also guide the development of individualized education plans (IEPs) to enhance learning outcomes.

For adults with Kabuki syndrome, neuropsychological evaluations can assist in diagnosing cognitive impairments, informing treatment plans, and providing strategies to manage daily challenges. They can also aid in vocational planning, support accommodations in the workplace, or help with Social Security Disability (SSD) benefit claims.