KSF Survey Leads to Planned Expansion of Dietary Clinical Trial

In the summer of 2022, the Kabuki Syndrome Foundation hosted its annual crowdsourcing survey. This year’s focus was on interest and potential barriers to participating in the dietary clinical trial at Kennedy Krieger Institute. Our input has resulted in the planned expansion of the trial, the only current clinical trial in Kabuki syndrome!

You can see your participation at work in this presentation which was shared with Kennedy Krieger and then with the National Institutes of Health. KSF is commited to a collaborative, patient-centered approach to finding treatments faster.