Kabuki Syndrome Fundraising Gala Raises Over $500,000

In a remarkable display of support, the “Quest for a Cure” fundraising gala for Kabuki syndrome unfolded as a resounding success. This inaugural, local event brought together a sold-out crowd of 300 supporters at City Winery in New York City on November 30, 2023. The mix of silent and live auctions, a paddle raise, and live entertainment, proved to be a powerful force in finding treatments for Kabuki syndrome.

The fundraising gala attracted a diverse range of sponsors who generously supported the cause. Their contributions were crucial in reaching the impressive milestone of over $500,000 raised for Kabuki Syndrome research. The event showcased the power of collective action, proving that when a community comes together, remarkable achievements are possible.

At the event, Dr. Hans Bjornsson and Dr. Jacqueline Harris were honored for their prestigious work and significant contributions to Kabuki syndrome research. Their commitment and groundbreaking work have been pivotal in advancing our understanding and treatment of this rare genetic disorder.

The success of the “Quest for a Cure” gala not only bolstered the financial resources for Kabuki syndrome research but also raised awareness about this rare disease within a new network of supporters. As the funds are channeled into ongoing research initiatives, the Kabuki Syndrome Foundation is building new connections and bringing our growing community one step closer to treatments.

We extend our heartfelt gratitude to every supporter and the event chairs for making this event a success! Special thanks to these key contributors in creating a truly memorable evening:
The Alternate Routes
Lydia Fenet
Sterling Design, Events & Planning
City Winery NYC

See more photos from the event on our Facebook.