Join the Largest Event for Kabuki Syndrome Research Updates

Update October 3, 2025:

You can now watch a recording of this event on our YouTube channel!

—

Exciting progress is underway in the Kabuki syndrome community, and you’re invited to be part of it! Join us for our live webinar, Pathway to Treatments: Families Fueling Kabuki Syndrome Research, on September 30, 2025, from 12–1:30 pm ET. 

This interactive event will share the:

• Latest updates on treatments in development
• A major announcement about our ICD-10 code
• Results from our 2025 community survey on symptom impact
• And more including Q&A sessions

You’ll hear from keynote speaker Charlene Son-Rigby, CEO of Global Genes, who will highlight the powerful role families play in driving research and treatment development.

Treatments are within reach, and you make them possible. Caregivers, adults with Kabuki syndrome, educators, clinicians, researchers, and industry representatives are all welcome to join and participate. Together, we’re shaping the future of Kabuki syndrome.

Register now to reserve your spot.

The webinar will be in English with captions available in multiple languages. It will be recorded. We encourage you to join us live and ask your questions during the Q&A sessions. 

—

You can now watch a recording of this event on our YouTube channel!