In order to fuel the research efforts we hope to advance, fundraising is critical to our success. There are multiple ways you can help.



If you, or someone you know, would like to make a donation to help us fuel more research for Kabuki Syndrome, please follow the link below to be directed to our Facebook Page and click on the donate button to contribute via credit card or PayPal. 

Checks may be made payable to
Kabuki Syndrome Foundation
and mailed to:

P.O. Box 214
Northbrook, IL  60065
(a tax receipt will be mailed to you)

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Help us get the word out about the foundation and our goals to raise funds to drive more Kabuki Syndrome Research. Please share our Facebook page with people in your network, tell your own story and invite them to get involved.

Click below to go to the Kabuki Syndrome Foundation Facebook page.

Or to start your own Facebook Fundraiser, click here:

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An important part of our fundraising efforts are the events that Kabuki families & friends organize. From local walk-a-thons and t-shirt sales, to golf outings and galas, any type of event can be a great opportunity to raise funds for research.


In the future, we plan to post information and ideas for hosting your own event. Please contact us if you have held an event previously and would like to share how you did so. 

The Kabuki Syndrome Foundation is a registered 501(c)(3) corporation, so donations may be tax deductible