Join Our Research Network

The Kabuki Syndrome Foundation is providing grants, facilitating collaboration, and hosting scientific symposiums with the ultimate goal of identifying and accelerating innovative therapeutic strategies for Kabuki syndrome.

Stay updated on calls for grant proposals, scientific symposiums, and key research opportunities.

Register with KSF

How You Can Get Involved

Our community’s greatest unmet needs guide our funding priorities. Our latest community survey resulted in the planned expansion of the only current clinical trial in Kabuki syndrome.

Cross-institutional collaboration accelerates rare disease research. Our new Discovery Grant provides funding for the identification of 1+ new therapeutic opportunity through multi-institution collaboration.

KSF partners with institutions who understand that 100% of our funds need to go directly to projects that have an impact on our community.


Annual KSF Events

KSF hosts a scientific symposium and family conference each year. In 2022, our virtual conference reached over 450 participants spanning 36 countries.

These events enable knowledge-sharing and foster collaboration amongst researchers and our community. Join us.

We're Listening.

Ready to get involved or have questions? We would love to hear from you.

Contact Our Research Team