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First KSF Monthly Lab Meeting Hosts Over 25 Researchers

On April 9, 2024, Dr. Clara Tang, KSF Director of Research, facilitated the first global Kabuki syndrome monthly lab meeting designed to enhance knowledge exchange and collaboration within the Kabuki syndrome research community. Hosting these interactive meetings highlights the foundation’s driving role in creating new opportunities for collaboration amongst expert investigators. Their collaboration is key for the accelerated development of treatments and tools for clinical trials. 

We’re thrilled to share that over 25 researchers from research groups around the world joined us live for the engaging meeting. Allison Kalinousky, PhD Candidate at the Johns Hopkins School of Medicine working with Dr. Jacqueline Harris and Dr. Hans Bjornsson, shared her work on biomarkers and outcome measures and fielded questions from the attendees.

All Researchers and Clinicians Invited: Next Lab Meeting on May 14th

The next Kabuki Syndrome Lab Meeting will be held on Tuesday, May 14, 2024. All researchers and clinicians with an interest in Kabuki syndrome are invited to attend. The current rotating schedule includes presentations from graduate students, post-docs, and scientists from the labs and clinics of our Medical & Scientific Advisory Board. If you would like to join this interactive meeting, please register here.

Discover How Biomarkers Support Clinical Trials

The Kabuki Syndrome Outcome measures and biomarkers Consortium (KSOC) is our collaborative study created to develop tools that can help take potential therapeutics to clinical trials. Dr. Jacqueline Harris, Kennedy Krieger Institute, is one of the four experts families can visit to participate in KSOC with travel reimbursement funded by KSF. Please complete this form if you are interested in joining KSOC.

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