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Kabuki Syndrome Foundation and AllStripes are partnering to create a database that will enable new Kabuki syndrome research projects! 

Sharing your journey with Kabuki syndrome can advance new treatments.

Because Kabuki syndrome is rare, researchers need more information directly from patients and their families to understand the condition. Your progression, symptoms and health challenges are all important clues that can help researchers develop new treatments. Join other Kabuki syndrome patients and families on AllStripes to contribute to multiple research efforts.  We’re looking for patients/families willing to contribute their de-identified medical records to make this effort as strong as possible.


What is AllStripes?

As the leading research platform dedicated to rare diseases, AllStripes makes it easy for patients to contribute to new treatment studies from home.  AllStripes will do the work to collect and analyze your de-identified medical records to help power faster, better drug development for Kabuki syndrome. Participate by signing up at and the AllStripes team will collect the records on your behalf, at no cost, and extract insights to power research. The more we know about Kabuki syndrome, the more we can do for Kabuki syndrome patients.

Signing up is easy!  Watch a step by step guide to registering on the AllStripes platform HERE.