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The major focus of our efforts is fundraising, which allows us to award grants for research projects that we, along with our Medical & Scientific Advisory Board, feel are most promising.

Additionally, we intend to foster collaboration across the medical and scientific communities, to create synergies and attract more resources focused on Kabuki Syndrome. 

KEY FOUNDATION STRATEGIES

We have set a goal of raising $5MM over the next three years, which will continue to fuel our work across three key initiatives:

Funding Strategy Graphic.png

STRATEGIC INVESTMENT INTO CENTERS OF EXCELLENCE

  • Invest into key Centers of Excellence that are leading the way in Kabuki Syndrome research via:

    • multi-disciplinary teams

    • improved diagnosis, early intervention and symptom management

    • supporting KS patients world-wide
       

ENABLE & ACCELERATE KABUKI SYNDROME RESEARCH

  • Build strategic relationships that will pool resources, increase knowledge sharing and accelerate research efforts

  • Facilitate the collection and coordination of critical research tools and inputs (e.g., databases, bio-repositories)

  • Support clinical trial readiness via awareness, education and patient recruitment 

CONTRIBUTE TO TARGETED RESEARCH PROGRAMS

  • Address funding gaps for the most promising research projects

  • Create awareness among and incent new researchers to pursue KS research

  • Identify new paths of research that will further expand treatment possibilities

  • Award grants for priority research initiatives