Our Impact

Since its creation in 2018, the Kabuki Syndrome Foundation has strived to drive and accelerate research efforts that will improve the quality of life for people with Kabuki syndrome. Together, we can secure a brighter future.

Thank you to our donors who have increased our ability to drive research with our community.


2023 End of Year Summary


The Kabuki Syndrome Foundation (KSF) is an Internal Revenue Code Section 501(c)(3) nonprofit charity, exempt from federal taxation. Transparency is both a requirement and an obligation that is vitally important to our Directors and staff.

By The Numbers

$2 Million
Committed to Kabuki syndrome research
Crowdsourced survey responses to guide future research
Individuals with Kabuki syndrome connected
Read More: Crowdsourcing Survey Impact

Donate to KSF

With your support, we can accelerate research that will produce life changing treatments.