Our Impact

Since its creation in 2017, the Kabuki Syndrome Foundation has strived to drive and accelerate research efforts that will improve the quality of life for people with Kabuki syndrome. Together, we can secure a brighter future.

Thank you to our donors who have increased our ability to drive research with our community.


2023 Midyear Impact Report


The Kabuki Syndrome Foundation (KSF) is an Internal Revenue Code Section 501(c)(3) nonprofit charity, exempt from federal taxation. Transparency is both a requirement and an obligation that is vitally important to our Directors and staff.

By The Numbers

Donated to Kabuki Syndrome research in 2022
Crowdsourced survey responses to guide future research
Connections across our social channels
Read More: Crowdsourcing Survey Impact

Donate to KSF

With your support, we can accelerate research that will produce life changing treatments.