2026 Midyear Impact Report: Improving Care Today, Preparing for Tomorrow
We’re excited to share the latest progress in our Midyear Impact Report, a look at how your support is improving the care of people with Kabuki syndrome today, while also advancing treatments toward tomorrow’s clinical trials.
At the Kabuki Syndrome Foundation, our aim is simple but ambitious: improve the lives of people with Kabuki syndrome through research, treatment development, better clinical care, and a connected global community.
You’ll hear directly from two incredible families, Sam and Emma’s, who generously shared how this progress is making a difference in their lives.
Thank You
Since our founding in 2018, we’ve worked alongside the global Kabuki syndrome community to accelerate research, improve clinical care, and create hope for families around the world.
The progress highlighted in this report belongs to all of us.
Thank you to every family who shares their experiences, every researcher advancing science, every clinician improving care, every volunteer raising awareness, and every donor making this work possible.
Together, we’re creating a future where every person with Kabuki syndrome has access to better care and one day, effective treatments.
Read the complete 2026 Midyear Impact Report and see what’s possible when our community comes together.