2021 Virtual Research Conference

Kabuki Count - Kabuki Syndrome Census
2021 Virtual  Research Conference
Friday & Saturday, October 22-23​

We are excited to announce the return of the Kabuki Syndrome Foundation Research Conference. This virtual event supports several of our strategic initiatives; one of which is to bring together hundreds of patient families from around the world, researchers, clinicians, and biotechnology firms working on Kabuki Syndrome. Event participation is free.  We hope to extend our reach even further this year in a virtual format.

Program highlights include:

  • Leading Kabuki Syndrome researchers will present their latest findings with LIVE Q&A
  • AllStripes, an innovative medical data science company, will discuss rare disease drug discovery through their research platform
  • Oryzon Genomics, a leading pharmaceutical company, will present the potential of a small molecule drug for use in Kabuki Syndrome
  • Researchers will discuss empowering patients and the role they play in discovery and basic research
  • Prioritizing research and creating a roadmap through community crowdsourced input
  • Global patient advocacy group recognitions followed by presentations and panel discussions
  • An inspirational panel discussion with adults who have Kabuki Syndrome


Conference Program
Conference Speaker List
Conference Sponsors